Parkinson’s Disease

Rainbow Soul and Tears – Storms in Life – Timed Writing Prompts

by Sheila Finkelstein on November 11, 2015

“The soul would have no rainbows if the eyes had no tears.” Laurel Burch

This quote is on a mug that I purchased from Amazon shortly after Sam died. During those first few difficult months, I gave myself permission to buy little, what for me were, “luxury items” as comforts for my soul, I suppose.

I do have several Laurel Burch mugs and hadn’t seen them since we moved here. The beauty of the image on this one initially drew me in and, even more importantly for me, the writing in the center of the mug was a reminder of tears… that tears are ok. Only I wasn’t doing much crying, permission or not. So that’s the story behind my having introduced the quote to our [writing] group today…

“Rainbows, I’m forever chasing,” I stated the other day when I went chasing a beautiful rainbow (to photograph) after a violent thunderstorm. It seems to me that perhaps the most beautiful rainbows come after turbulent storms rather than gentle rains.

Does my soul, thus, need turbulence to have rainbows in it? Does it need to have the tears to create whatever combination creates a rainbow? Beautiful colors? Shapes? Purity?

(and the 4 minute timer called the end….Interestingly, for me, the next prompt somewhat continued the “conversation.”)

“Life isn’t about waiting for the storm to pass… It’s about learning to stand in the rain.” – Anonymous

This one brings up immediate memories… tearful ones now…of the hurricane of a couple of years ago. I recently came across photos of Sam sitting in my closet… me, too, when I got back in to join him after taking the photo. Close and secure, the two of us, as we waited for the hurricane and its threats to pass over.

Though we weren’t physically standing in the rain we were going with it, no protest, simply enjoying being with one another and whatever was going on… at least I’d like to think there was no fear there.

The effects of that hurricane left us powerless… in electricity that is.. for several days. And we got to appreciate being in the present. Instead of complaining I treasured the time for reading, resting, eating gooshy strawberries that had defrosted and were still cold when I took them out of the cooler.

How glad I was to have Sam with me, my companion, my lover, and, I guess we were learning to stand in the rain of our lives over several years… the rain being the effects of Parkinson’s disease on him and, thus, us.

PS – For cheer when I bought the Rainbow Soul mug I also bought Laurel Burch’s Ponies and Parrots mug from Amazon –Final note on this post – Having created a miraculous life of beauty and love with her art and color and entrepreneurship, despite constant pain and broken bones, Laurel Burch sadly passed away (2 months and 8 days before Sam’s death) on Sept. 13, 2007 at the age of 61.

See her spirit and process in a 6-minute VIDEO interview with her. You can also read about her life in The New York Times – Obituary – Sept. 20, 2007.

NOTE: The two Laurel Burch mugs shown here are long longer available. You can find other beautiful ones on LAUREL BURCH MUGS on AMAZON .

First published on Sept 1, 2009. Updated December 7, 2019

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Dreams and Visions from September 2005

by Sheila Finkelstein on December 11, 2009

I just came across this on one of my sites and thought it belonged here… one of those teary moments and some of the writing might have been healing then. The reading and remembering is now part of the healing process.

9/14/05 – I have participated in many very powerful programs with Julie Jordan Scott. Currently I am in Julie’s Dream Activation Program, see DREAMS and in a writing program of hers. Part of the 42 days of Dream Activation is sharing one’s dreams and having them witnessed. Today I shared my expression around my dreams.

Sam Finkelstein blows kisses
Sam Finkelstein Blowing Kisses at the Surprise 45th Wedding Anniversary Party given for us by our sons and their families – 8/27/05

DREAMS for Dream Activation Witnessing – September 14, 2005

I came into this Dream Activation program after it started, stating that I do not really have dreams, at least not any that I can put my fingers on/around.

Last night, I read the statement On VISION, in ATTITUDE OF GRATITUDE (p. 14) by Keith Harrell. He speaks of it, stating that “A vision can’t fail if you do the right thing.” He goes on to say, “The most critical first step is understanding your purpose in life and developing a personal vision. A personal vision consists of knowing what you want to do, for whom, and for what purpose.”

I’m thinking that I was equating Dreams with Vision and I have not specifically defined what I want to do for whom and for what purpose.

In order to prepare for my share today, I needed to write about my husband and create a clearing. So two nights ago I wrote and then, in Julie’s Special Writing Program yesterday which I’ve also just joined, the second part of what’s up for me seemed to fall in place.

To lay the foundation, I want to share what I first wrote. Sam, my beloved husband, was diagnosed with Parkinson’s Disease 8 1/2 years ago and in the past year, communication, getting his thoughts out, has become quite difficult at times and we’ve had some other intermittent challenges. And so I wrote –

DREAMING

I dream of things that can never be, or no longer be. I dream of Sam and I being able to travel, to take the cruises he desires, to walk the beaches with him at my side. I dream of our having extended conversations, many of which we never had.

I dream of being sweet, loving and compassionate with him, not the ranting bitch that emerges from time to time…sometimes frequent times.

I dream of his initiating, generating, and my being able to lean on him, depend on him, though I’d protest it along the way.

I dream of people helping him, engaging him, enlivening him…things that I have no patience for. I dream of letting go of resentment and forgiving myself for not spending more AND quality time with him.

I notice I keep saying “him.” My mother used to hate when I, or anyone, referred to her as “her.” “Him” is Sam, my beloved, who has put up with so much with me, always putting me first before himself, or anyone else.

Though he often protested, at least initially, on things I started, new and innovative, he ultimately was always there for me, supporting me. And with it all, bottom line, in whatever way, I am always there for him.

If I’d see myself through Sam’s eyes I’d be quite accomplished, tackling huge projects, as yet unknown and undefined.

Right now I dream of peace and ease, of having it all – luxury unlimited, money and resources, all without having to put out much effort.

I dream of communities of people interacting purposefully and with love.

I dream of people making discoveries and being excited by what they do.

I dream of having, being in a close knit community, with friends who energize and excite me and themselves.

I dream of books not yet written, 2 at least, though I know not what they are.

I dream of being famous, for what I do not know.

I dream of connections – people being connected for whatever they need.

I dream of a clutter-free environment, of a staff to tend to all of our needs – cooking, cleaning, organizing.

At one point I dreamed of watching sunrise over the ocean, while lying in bed, opening the drapes with a remote control. That dream also had woods and streams in the back of the house where we could see sunset and workshops for an artists’, actually corporate workers’, retreat. The latter is no longer part of my dream. Is it resignation or simply that I’ve moved in different directions?

And so my writing concluded the other night and I thought I’d search through my writings in my Picture to Ponder almost-daily ezine (now weekly) to find the points I seem to emphasize and thus get a handle on where I’m standing.

Then I experienced more free flow writing, with Julie yesterday.

The final prompt for the session was THE GIFT I GIVE TO MY READERS IS. . .and I wrote,

“The gift I give my readers is the opportunity for them to discover the richness in their worlds, the beauty of what’s in their physical spaces, the visions they have, perhaps as-yet unknown, in their souls…

the words, the tools, the ways of interconnecting to their selves and to each other, the people in their lives whom they’ve met and not yet met.

The gift I give to my readers is the beauty of knowing and believing in themselves.

And, I’m reminded that in “mission statements” for jobs in varying fields was always some form of supporting/empowering people in believing and themselves.

It’s who I be in my actions. Is it a Vision? A dream? I don’t know.”

Note for those new to this blog – My beloved Sam passed away on 11/21/07, see REMEMBERING SAM, and as I put this together on 1/7/09 I am struggling with what new dreams I can create. The dreams listed after those I had of life with Sam certainly can act as inspiration for me, they are and came from someplace within as did THE GIFT I GIVE MY READERS as spelled out above.

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Finding Direction Using Writing and Photography – NaBloPoMo Day 15

by Sheila Finkelstein on August 2, 2009

Two weeks ago, I decided to sign up for NaBloPoMo, National Blog Posting Month (can start any time) and made an agreement, mainly with myself, to do a blog post daily for 30 days. I decided to do this as a way of creating a structure and some self-discipline for myself.

Right now, I have two somewhat active blogs. Since I had not been posting much on Writing for Healing, I thought this challenge would be way to build it. The challenge I’m finding is that I do not have a set intention, other than to post. When I set up the blog, I thought it would be a good idea to reach, particularly caregivers, actually anyone who is mourning a loss. Mourning a loss does not necessarily mean there has to be a physical “death”, though I guess there is some form of “dying” off of something that had been a certain way, “lived” a certain way.

I would often say to my husband, as we lay in bed at night, “I miss you.” In retrospect this, I’m sure, was not the kindest thing to say to him, since I’m sure he missed himself, his “normalcy” and what we were able to do in the past. There wasn’t anything he, or I, could do about it. At those times I was, particularly, missing his ability to communicate freely and to easily roll over in bed and hold me in the way he had for 40 plus years.

As I’ve mentioned in earlier posts, the biggest toll Parkinson’s Disease took on Sam was his ability to vocalize the words that were right there in his head. Also though he fortunately was able to walk easily, he did have some rigidity in freedom of motion in other positions.

My wandering here today is an example of writing without a specific intention… or perhaps many. Back to my original underlying purpose of this blog, supporting others in finding their healing processes through writing. When I think of that, I’m left with the questions, “Should I be telling? Teaching? Simply sharing writing?” I started to take the “easy” way and share writings I had already done.

Today, I had the thought, “Why am I focussing here, when the thing I most love is taking photographs?” Thus I’m taking on posting a photo daily on Photography and Transformation.com. Today’s post is a Weathered Wall, which might well inspire writing and perhaps healing writing, I thus invite you to visit a Weathered Wall – Photography for Meditation.

You might experience the riches of nature in addition to mourning the passing of what might have been before.

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Music for Openings Sparks Writing – NaBloPoMo Day 4

by Sheila Finkelstein on July 22, 2009

Earlier this week, I was on an empowering teleclass, “Catch the Breeze – Radical Weight Loss from the Inside out” led by Marcia Breitenbach, The Songletter Lady and Transformation Specialist. The call was about “energy” and “releasing” and during it she spoke of music as access to unlocking areas of our brain, opening up energy blocks . She spoke of how music is being used with people afflicted with Parkinson’s Disease and others with Alzheimers.

I immediately started feeling sad and teary. Then I got absorbed in other segments of the call and was able to let those feelings go. The next day I was once again filled with guilt, sadness and remorse, for I had been aware of the impact of music and in the day-to-day living, where music was not an integral part Sam’s and my life, I had forgotten about it.

What made it “worse” as I remembered, was that a friend had composed an upbeat song which she sang as she played her ukulele. She gave us a copy of her rough recording. We both enjoyed it, especially Sam, and then as time went on I forgot about it and the power of the music. Because of the effects of Parkinson’s Disease, Sam was not likely to remember, himself, to generate such conversations and reminders.

Once again, I am faced with “There are no do-overs”. As I write the “story” of it, I am able to do more releasing. At the same time I am healing and reminding myself of the “good” things I did as a caregiver, the walks we had, the things we enjoyed. I can also remind myself that sharing like this can empower others and I know that Sam, also, would have appreciated that. People mattered greatly to him also.

During the same teleclass, Marcia suggested we take on being with our challenges as “allies”, rather than enemies. Thus, “Sadness is my ally.” “Grief is my ally.” “Tears are my ally.” They are some of the components of my life, my “friends” who encourage me to write and put myself out to share and make a difference with others.

To learn more about Marcia’s work, I invite you to visit her site, The Magnificent You. You can get the words for and listen to the Magnificent You song at Songletter. This page also includes explanations on “Music Creating New Software in the Brain” and more.

Note: For those interested in doing more exploration in writing for yourself, my friend and mentor Julie Jordan Scott is Introducing the Summer Writing Intensive Creativity Camp (at Home or wherever you happen to be) See Summer Writing Camp for details.

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Healing as Defined in Online Dictionaries – plus Haiku

by Sheila Finkelstein on July 20, 2009

Yesterday I concluded here with “all writing is healing.” Today in my Morning Pages writing (also referenced yesterday – 7/19), this statement surfaced and the thought to check the dictionary kicked in. It seemed like a good idea, a foundation for this blog, so I did. I found:

1. To restore to health or soundness; cure. See Synonyms at cure.
2. To set right; repair: healed the rift between us.
3. To restore (a person) to spiritual wholeness.

http://www.thefreedictionary.com/healing (See Below for more definitions.)

“Cure”, “return to wholeness”, “restore”, “repair”, all words that are included in the above. All imply something is/was wrong prior to the healing process. And that’s what it is, a “process.”

In November 2005, I wrote: “Haiku When Fatigued”:

Scattered all over
Pieces of my heart shattered
Love’s disappointment

When I write for healing, in my Morning Pages and/or from prompts in my writers’ group, the words simply come. Without a specific set intention, they flow from within. The “Haiku When Fatigued” was written two years before Sam died. The “love’s disappointment” I’m sure was referring to my expectations that our lives would have healthily gone on intertwined forever, or until one of us peacefully passed in his or her sleep at a much older age… in the nineties at least. (Sam was 75 and he was blessed with basically good health during most of those years.)

We never expected anything like Parkinson’s Disease. Fortunately for both of us Sam, gentle, accepting man that he was, was able to be with it throughout his 10+ years of affliction and accept what was happening.

I wasn’t so accepting. Anger would set in and so I wrote and counted syllables to gain control:

My days are stress-filled
Insidious I call it
Parkinson’s Disease

Smart, bright, humor-filled
“Sam’s the Man” they all do say
Gentle, loving, kind.

Tapping into Sam
The part that’s rich and funny
My sweet loving man

In October of 2008, almost a year after his death, I set up a web page with memories of those smiles and stories he wrote with photos of our sons as toddlers. See SAM SMILES. This was another creative form of healing for me.

So, I’m back to where I started today and leaving with other questions… “Restoring” to what? I like the sound of “spiritual wholeness”. And what would that look like? Also, is it a “restoration” or a new “creation?
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MORE DEFINITIONS of “HEALING”:
Tending to cure; soothing; mollifying; as, the healing art; a healing salve; healing words.
http://www.answers.com/topic/healing-2

heal⋅ing [hee-ling]
–adjective
1. curing or curative; prescribed or helping to heal.
2. growing sound; getting well; mending.
–noun
3. the act or process of regaining health: a new drug to accelerate healing.
http://dictionary.reference.com/browse/healing

healing,

n 1. the process of recovery, repair, and restoration.
2. return to wholeness.
http://medical-dictionary.thefreedictionary.com/healing

and medically defined from the same site

healing /heal·ing/ (hēl´ing) a process of cure; the restoration of integrity to injured tissue.

healing by first intention that in which union or restoration of continuity occurs directly without intervention of granulations.
healing by second intention union by closure of a wound with granulations.
spiritual healing the use of spiritual practices, such as prayer, for the purpose of effecting a cure of or an improvement in an illness.
healing by third intention treatment of a grossly contaminated wound by delaying closure until after contamination has been markedly reduced and inflammation has subsided.
http://medical-dictionary.thefreedictionary.com/healing

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